WE'RE HERE TO TRANSCEND SICKLE CELL DISEASE
We’re here to support our survivors, families, and communities with evidence-based research. We’re here to navigate this disease together while rooting ourselves in the following core pillars:
Open dialogue goes a long way. We aim to form our goals and initiatives based on input from the community. By listening to their needs, we are able to immediately address issues, solve problems and improve their lifestyle.
The type of effective treatments and curative therapies that are available to us today have come a long way. But it’s not enough. We want to really know what’s working and what’s not by listening to your first-hand experiences and championing our journeys.
Our disease is the genetic backbone of so many cures that exist today. So, why not us? Why shouldn’t we have the same opportunities? We want our disease presented on a level playing field and to provide SCD awareness, education, research, and treatment options to anyone who’s willing to listen.
We created this organization because we were looking for one that understood how isolating it can be to deal with this disease. We wanted to create a safe place for all of you to share, grow, and be at peace with yourselves and your newfound support group (that’s us).